Dravet Syndrome is a rare, debilitating epilepsy with neurodevelopmental
delays that begins in childhood, fostering a close-knit community of
caregivers and families. To support them, we partnered with UCB Pharma
and non-profits to create Camp Small Steps—an inclusive camp held in
regions across the country where children and their families could connect,
make memories, and enjoy engaging sensory activities. Sometimes,
the simplest solutions are the most powerful.